CURRICULUM VITAE
Positions
University of North Carolina, Chapel Hill, North Carolina
2020- Professor of Social Medicine, Center for Bioethics
2015-2020 Associate Professor of Social Medicine, Center for Bioethics
2012-2015 Assistant Professor of Social Medicine, Center for Bioethics
Vanderbilt University, Nashville, Tennessee
2008-2012 Assistant Professor, Center for Biomedical Ethics & Society
Arizona State University, Tempe, Arizona
2005-2008 Assistant Professor, Women & Gender Studies Program
Faculty Affiliate, Consortium for Science, Policy & Outcomes
Education
Rensselaer Polytechnic Institute, Troy, New York
2005 Ph.D., with distinction, Science and Technology Studies
2002 M.S., Science and Technology Studies
Connecticut College, New London, Connecticut
1998 B.A., with honors, Psychology-Based Human Relations and French
Publications
Books
Fisher, Jill A. (2020) Adverse Events: Race, Inequality, and the Testing of New Pharmaceuticals. New York, NY: New York University Press.
Winner of the 2022 Donald W. Light Book Award for Applied Medical Sociology, given by the Medical Sociology Section of the American Sociological Association.
Winner of the 2021 Robert K. Merton Book Award, given by the Science, Knowledge, and Technology Section of the American Sociological Association.
Fisher, Jill A. (Ed.) (2011) Gender and the Science of Difference: Cultural Politics of Contemporary Science and Medicine. New Brunswick, NJ: Rutgers University Press.
Fisher, Jill A. (2009) Medical Research for Hire: The Political Economy of Pharmaceutical Clinical Trials. New Brunswick, NJ: Rutgers University Press.
Special Issues of Academic Journals
Monahan, Torin & Jill A. Fisher (2008) Surveillance and Inequality. Surveillance & Society 5 (3).
Peer-Reviewed Articles
Fisher, Jill A. & Torin Monahan (2023) “Mutual Emotional Labor as Method: Building Connections of Care in Qualitative Research.” The Qualitative Report 28 (11): 3192-3212.
Waltz, Margaret, Anne Drapkin Lyerly, & Jill A. Fisher (2023) “Exclusion of Women from Phase I Trials: Perspectives from Investigators and Research Oversight Officials.” Ethics & Human Research 45 (6): 19-30.
Waltz, Margaret, Arlene M. Davis, & Jill A. Fisher (2023) “‘Death and Taxes’: Why Financial Compensation for Research Participants is an Economic and Legal Risk.” Journal of Law, Medicine & Ethics 51 (2): 413-425.
Monahan, Torin & Jill A. Fisher (2023) “Partnering Through It: Confronting the Institutional Challenges Facing Dual-Career Academic Couples.” Journal of Women and Minorities in Science and Engineering 29 (3): 87-101.
Waltz, Margaret, Jill A. Fisher, & Rebecca L. Walker (2023) “Mission Creep or Mission Lapse? Scientific Review in Research Oversight.” AJOB Empirical Bioethics 14 (1): 38-49.
Walker, Rebecca L., Douglas MacKay, Margaret Waltz, Anne Drapkin Lyerly, & Jill A. Fisher (2022) “Ethical Criteria for Improved Human Subject Protections in Phase I Healthy Volunteer Trials.” Ethics & Human Research 44 (5): 2-21.
Cottingham, Marci D. & Jill A. Fisher (2022) “Gendered Logics of Biomedical Research: Women in U.S. Phase I Clinical Trials.” Social Problems 69 (2): 492-509.
Walker, Rebecca L., Katherine W. Saylor, Margaret Waltz, & Jill A. Fisher (2022). “Translational Science: A Survey of US Biomedical Researchers’ Perspectives and Practices.” Lab Animal 51 (1): 22-35.
Waltz, Margaret, Katherine W. Saylor, Jill A. Fisher, & Rebecca L. Walker (2021). “Biomedical Researchers’ Perceptions of the NIH’s Sex as a Biological Variable Policy for Animal Research: Results from a US National Survey.” Journal of Women’s Health 30 (10): 1395-1405.
Waltz, Margaret, Jill A. Fisher, Anne Drapkin Lyerly, & Rebecca L. Walker (2021). “Evaluating the National Institutes of Health’s Sex as a Biological Variable Policy: Conflicting Accounts from the Front Lines of Animal Research.” Journal of Women's Health 30 (3): 348-354.
Kalbaugh, Corey A., Julianne M. Kalbaugh, Lisa McManus, & Jill A. Fisher (2021) “Healthy Volunteers in US Phase I Clinical Trials: Sociodemographic Characteristics and Participation Over Time.” PLoS ONE 16 (9): e0256994.
Fisher, Jill A., Lisa McManus, Julianne M. Kalbaugh, & Rebecca L. Walker (2021). “Phase I Trial Compensation: How Much Do Healthy Volunteers Actually Earn from Clinical Trial Enrollment?” Clinical Trials 18 (4): 477-487.
Fisher, Jill A., Megan M. Wood, & Torin Monahan (2021). “Speculating on Precarious Income: Finance Cultures and the Risky Strategies of Healthy Volunteers in Clinical Drug Trials.” Journal of Cultural Economy 14 (4): 464-484.
Monahan, Torin & Jill A. Fisher (2020) “Sacrificial Labour: Social Inequality, Identity Work, and the Damaging Pursuit of Elusive Futures.” Work, Employment & Society 34 (3): 441-456.
Jain, Nupur, Marci D. Cottingham, & Jill A. Fisher (2020) “Disadvantaged, Outnumbered, and Discouraged: Women’s Experiences as Healthy Volunteers in U.S. Phase I Trials.” Critical Public Health 30 (2): 141-152.
Walker, Rebecca L. & Jill A. Fisher (2019) “‘My Body Is One of the Best Commodities’: Exploring the Ethics of Commodification in Phase I Healthy Volunteer Clinical Trials.” Kennedy Institute of Ethics Journal 29 (4): 305-331.
Fisher, Jill A., Torin Monahan, & Rebecca L. Walker (2019) “Picking and Choosing Among Phase I Trials: A Qualitative Examination of How Healthy Volunteers Understand Study Risks.” Journal of Bioethical Inquiry 16 (4): 535-549.
McManus, Lisa, Arlene Davis, Rebecca L. Forcier, and Jill A. Fisher (2019) "Appraising Harm in Phase I Trials: Healthy Volunteers’ Accounts of Adverse Events." Journal of Law, Medicine & Ethics 47 (2): 323-333.
Fisher, Jill A. & Rebecca L. Walker (2019) "Advancing Ethics and Policy for Healthy-Volunteer Research through a Model-Organism Framework." Ethics & Human Research 41 (1): 4-14.
Fisher, Jill A., Lisa McManus, Marci D. Cottingham, Julianne M. Kalbaugh, Megan M. Wood, Torin Monahan, & Rebecca L. Walker (2018) "Healthy Volunteers' Perceptions of Risk in U.S. Phase I Clinical Trials: A Mixed-Methods Study." PLOS Medicine 15 (11): e1002698.
Fisher, Jill A., Lisa McManus, Megan M. Wood, Marci D. Cottingham, Julianne M. Kalbaugh, Torin Monahan, & Rebecca L. Walker (2018) "Healthy Volunteers' Perceptions of the Benefits of their Participation in Phase I Clinical Trials." Journal of Empirical Research on Human Research Ethics 13 (5): 494-510.
Williams, Quintin & Jill A. Fisher (2018) "Captive to the Clinic: Phase I Clinical Trials as Temporal Total Institutions." Sociological Inquiry 88 (4): 724-748.
McManus, Lisa & Jill A. Fisher (2018) “To Report or Not to Report: Exploring Healthy Volunteers’ Rationales for Disclosing Adverse Events in Phase I Drug Trials.” AJOB Empirical Bioethics 9 (2): 82-90.
Walker, Rebecca L., Marci D. Cottingham, & Jill A. Fisher (2018) “Serial Participation and the Ethics of Phase 1 Healthy Volunteer Research.” Journal of Medicine and Philosophy 43 (1): 83-114.
Cottingham, Marci D., Julianne M. Kalbaugh, Teresa Swezey, & Jill A. Fisher (2018) “Exceptional Risk: Healthy Volunteers’ Perceptions of HIV/AIDS Clinical Trials.” Journal of Acquired Immune Deficiency Syndromes 79: S30-S36.
Henderson, Gail E., Holly L. Peay, Eugene Kroon, Rosemary Jean Cadigan, Karen Meagher, Thidarat Jupimai, Adam Gilbertson, Jill Fisher, Nuchanart Q. Ormsby, Nitiya Chomchey, Nittaya Phanuphak, Jintanat Ananworanich, Stuart Rennie (2018) “Ethics of Treatment Interruption Trials in HIV Cure Research: Addressing the Conundrum of Risk/Benefit Assessment.” Journal of Medical Ethics 44 (4): 270-276.
Cottingham, Marci D. & Jill A. Fisher (2017) "From Fantasy to Reality: Managing Biomedical Risk Emotions in and through Fictional Media." Health, Risk & Society 19 (5-6): 284-300.
Fisher, Jill A. & Marci D. Cottingham (2017) "This Isn't Going to End Well: Fictional Representations of Medical Research in Television and Film." Public Understanding of Science 26 (5): 564-578.
Cottingham, Marci D. & Jill A. Fisher (2016) "Risk and Emotion Among Healthy Volunteers in Clinical Trials." Social Psychology Quarterly 79 (3): 222-242.
Monahan, Torin & Jill A. Fisher (2015) "‘I’m Still a Hustler’: Entrepreneurial Responses to Precarity by Participants in Phase I Clinical Trials.” Economy and Society 44 (4): 545-566.
Monahan, Torin & Jill A. Fisher (2015) “Strategies for Obtaining Access to Secretive or Guarded Organizations.” Journal of Contemporary Ethnography 44 (6): 709-736.
Edelblute, Heather B. & Jill A. Fisher (2015) “Using ‘Clinical Trial Diaries’ to Track Patterns of Participation for Serial Healthy Volunteers in U.S. Phase I Studies.” Journal of Empirical Research on Human Research Ethics 10 (1): 65-75.
Fisher, Jill A. (2015) “Feeding and Bleeding: The Institutional Banalization of Risk to Healthy Volunteers in Phase I Pharmaceutical Clinical Trials.” Science, Technology, & Human Values 40 (2): 199-226
Fisher, Jill A. (2015) “Stopped Hearts, Amputated Toes, and NASA: Contemporary Legends among Healthy Volunteers in US Phase I Clinical Trials.” Sociology of Health and Illness 37 (1): 127-142.
Cottingham, Marci D. & Jill A. Fisher (2015) "Consenting to Heteronormativity: Sexual Assumptions in Biomedical Research." About Gender 4 (7): 1-18.
Fisher, Jill A., Marci D. Cottingham, & Corey A. Kalbaugh (2015) "Peering into the Pharmaceutical 'Pipeline': Investigational Drugs, Clinical Trials, and Industry Priorities." Social Science & Medicine 131: 322-330.
Cottingham, Marci D., Corey A. Kalbaugh, & Jill A. Fisher (2014) “Tracking the Pharmaceutical Pipeline: Clinical Trials and Global Disease Burden.” Clinical and Translational Science 7 (4): 297-299.
Fisher, Jill A. (2013) “Expanding the Frame of ‘Voluntariness’ in Informed Consent: Structural Coercion and the Power of Social and Economic Context.” Kennedy Institute of Ethics Journal 23 (4): 355-379.
Fisher, Jill A. & Torin Monahan (2012) “Evaluation of Real-Time Location Systems in their Hospital Contexts.” International Journal of Medical Informatics 81 (10): 705-712.
Fisher, Jill A. & Corey A. Kalbaugh (2012) “United States Private-Sector Physicians and Pharmaceutical Contract Research: A Qualitative Study.” PLoS Medicine 9 (7): e1001271.
Fisher, Jill A. & Corey A. Kalbaugh (2012) “Altruism in Clinical Research: Coordinators’ Orientation to their Professional Roles.” Nursing Outlook 60 (3): 143-148.
Fisher, Jill A. & Corey A. Kalbaugh (2011) “Challenging Assumptions About Minority Participation in U.S. Clinical Research.” American Journal of Public Health 101 (12): 2217-2222.
Monahan, Torin & Jill A. Fisher (2011) “Surveillance Impediments: Recognizing Obduracy with the Deployment of Hospital Information Systems.” Surveillance & Society 9 (1/2): 1-16.
Fisher, Jill A. & Torin Monahan (2011) “The ‘Biosecuritization’ of Healthcare Delivery: Examples of Post-9/11 Technological Imperatives.” Social Science & Medicine 72 (4): 545-552.
Monahan, Torin & Jill A. Fisher (2010) “Implanting Inequality: Empirical Evidence of Social and Ethical Risks of Radio-Frequency Identification (RFID) Devices.” International Journal of Technology Assessment in Health Care 26 (4): 370-376.
Fisher, Jill A. & Lorna M. Ronald (2010) “Sex, Gender, and Pharmaceutical Politics: From Drug Development to Marketing.” Gender Medicine 7 (4): 357-370.
Monahan, Torin & Jill A. Fisher (2010) “Benefits of ‘Observer Effects’: Lessons from the Field.” Qualitative Research 10 (3): 357–376.
Fisher, Jill A. (2010) “Re-inscribing Gender within New Modes of Medical Expertise: The Investigator-Coordinator Relationship in the Clinical Trials Industry.” Gender, Work & Organization 17 (2): 150-173.
Fisher, Jill A. (2008) “Institutional Mistrust in the Organization of Pharmaceutical Clinical Trials.” Medicine, Health Care, and Philosophy 11 (4): 403-13.
Fisher, Jill A. (2008) “Practicing Research Ethics: Private-Sector Physicians & Pharmaceutical Clinical Trials.” Social Science & Medicine 66 (12): 2495-2505.
Fisher, Jill A. & Torin Monahan (2008) “Tracking the Social Dimensions of RFID Systems in Hospitals.” International Journal of Medical Informatics 77 (3): 176-183.
Fisher, Jill A. (2007) “‘Ready-to-Recruit’ or ‘Ready-to-Consent’ Populations?: Informed Consent and the Limits of Subject Autonomy.” Qualitative Inquiry 13 (6): 875-894.
Fisher, Jill A. (2007) “Coming Soon to a Physician Near You: Medical Neoliberalism and Pharmaceutical Clinical Trials.” Harvard Health Policy Review 8 (1): 61-70.
Fisher, Jill A. (2007) “Governing Human Subjects Research: Individualized Ethics and Structural Inequalities.” Science & Public Policy 34 (2): 117-126.
Fisher, Jill A. (2006) “Co-ordinating ‘Ethical’ Clinical Trials: The Role of Research Coordinators in the Contract Research Industry.” Sociology of Health and Illness 28 (6): 678-694.
Fisher, Jill A. (2006) “Procedural Misconceptions and Informed Consent: Insights from Empirical Research on the Clinical Trials Industry.” Kennedy Institute of Ethics Journal 16 (3): 251-268.
Fisher, Jill A. (2006) “Playing Patient, Playing Doctor: Munchausen Syndrome, Clinical S/M, and Ruptures of Medical Power.” Journal of Medical Humanities 27 (3): 135-149.
Fisher, Jill A. (2006) “Investigating the Barons: Narrative & Nomenclature in Munchausen Syndrome.” Perspectives in Biology and Medicine 49 (2): 250-262.
Fisher, Jill A. (2002) “Tattooing the Body, Marking Culture.” Body & Society 8 (4): 91-107.
Book Chapters
Fisher, Jill A. (online first) “Healthy Volunteers.” In D. MacKay & A. Iltis (Eds.)., Oxford Handbook of Research Ethics. New York: Oxford University Press.
Fisher, Jill A. (2011) “Gendering Science: Contextualizing Historical and Contemporary Pursuits of Difference.” In J.A. Fisher (Ed.), Gender and the Science of Difference: Cultural Politics of Contemporary Science and Medicine (pp. 1-23). New Brunswick, NJ: Rutgers University Press.
Fisher, Jill A. & Lorna M. Ronald (2008) “Direct-to-Consumer Responsibility: Medical Neoliberalism in Pharmaceutical Advertising and Drug Development.” In S.M. Chambré & M. Goldner (Eds.), Patients, Consumers and Civil Society (Advances in Medical Sociology, Volume 10) (pp. 29-51). Brighton, UK: Emerald Publishing.
Fisher, Jill A. (2006) “Indoor Positioning and Digital Management: Emerging Surveillance Regimes in Healthcare.” In T. Monahan (Ed), Surveillance and Security: Technological Politics and Power in Everyday Life (pp. 77-88). New York: Routledge.
Comparative Effectiveness Reports
Lindegren ML, Krishnaswami S, Fonnesbeck C, Reimschisel T, Fisher J, Jackson K, Shields T, Sathe NA, McPheeters ML. Adjuvant Treatment for Phenylketonuria (PKU). Comparative Effectiveness Review No. 56. (Prepared by the Vanderbilt Evidence-based Practice Center under Contract No. HHSA 290-2007-10065-I.) AHRQ Publication No. 12- EHC035-EF. Rockville, MD: Agency for Healthcare Research and Quality. February 2012.
Walsh WF, Chescheir NC, Gillam-Krakauer M, McPheeters ML, McKoy JN, Jerome R, Fisher JA, Meints L, Hartmann, KE. Maternal-Fetal Surgical Procedures. Technical Brief No. 5. (Prepared by the Vanderbilt Evidence-based Practice Center under Contract No. 290-2007-10065.) AHRQ Publication No. 10(11)-EHC059-EF. Rockville, MD: Agency for Healthcare Research and Quality. April 2011.
Hartmann KE, McPheeters ML, Biller DH, Ward RM, McKoy JN, Jerome RN, Micucci SR, Meints L, Fisher JA, Scott T, Slaughter JC, Blume JD (2009) Treatment of Overactive Bladder in Women. Evidence Report/Technology Assessment No. 187 (Prepared by the Vanderbilt Evidence-based Practice Center under Contract No. 290-2007-10065-I.) AHRQ Publication No. 09-E017. Rockville, MD: Agency for Healthcare Research and Quality. August 2009.
Grants
PI or Co-PI
2023-2026 “Challenging Allergies: The Search for a Magic Bullet for Pediatric Food Allergies.” National Library of Medicine (NIH), Principal Investigator, $145,132 (anticipated).
2022-2024 “UNC Food Allergy Initiative Bioethics Supplement.” National Institute of Allergy and Infectious Diseases (NIH), Project Principal Investigator [Parent Grant PI: Edwin H. Kim], $155,500.
2021-2024 “Partnering Through It: Building a Research Base for Dual-Career Academics.” National Science Foundation, Co-Principal Investigator [with Torin Monahan (PI)], $641,048.
2020-2022 “Exploring the Ethical Dimensions of Peanut Allergy Immunotherapy Research.” National Institutes of Health, Principal Investigator, $427,625.
2017-2022 "Healthy Volunteers as Model Organisms: Comparative Research Ethics and Policy for Phase I Trials" National Institutes of Health, Principal Investigator [with Rebecca L. Walker (Co-PI)], $1,586,100.
-
2018-2019 Awarded R01 Administrative Supplement for Research on Sex/Gender Influences, $101,075
2012-2017 “Factors Affecting Healthy Volunteers’ Long-Term Participation in Clinical Trials” National Institutes of Health, Principal Investigator, $1,874,216.
-
2016-2017 Awarded R01 Administrative Supplement, $60,800
-
2013-2014 Awarded Research Supplement to Promote Diversity in Health-Related Research, $38,451.
2009-2012 “Phase I Clinical Trials and the Informed Consent of Healthy Subjects" National Institutes of Health, Principal Investigator, $385,058.
2007-2010 “Effects of RFID Technologies on Organizational Dynamics in Hospitals” National Science Foundation, Principal Investigator [with Torin Monahan (Co-PI)] $247,162.
2006-2009 “Workshops on Surveillance and Society” National Science Foundation, Co-Principal Investigator [with Torin Monahan (PI), Gary Marx (Co-PI), & Simon Cole (Co-PI)], $108,807.
2003-2005 “Informed Consent in Private Sector Mental Health Research” Kirschstein-National Research Service Award, National Institute of Mental Health (NIH), Principal Investigator, $82,503
Awards & Honors
2023 Co-authored article (“Gendered Logics of Biomedical Research: Women in U.S. Phase I Clinical Trials”) selected as co-winner of the 2023 Sociology of Sex and Gender Distinguished Article Award, Sex and Gender Section of the American Sociological Association.
2023 Selected for a Brocher Foundation fellowship and writing residency in Hermance, Switzerland (March 2023).
2022 Elected Chair, Section on Science, Knowledge, and Technology of the American Sociological Association (3-year term: 2022-2025).
2022 Adverse Events selected as winner of the 2022 Donald W. Light Book Award for Applied Medical Sociology, Medical Sociology Section of the American Sociological Association.
2021 Elected as a Fellow of The Hastings Center, the independent, nonpartisan, interdisciplinary research institute that focuses on ethical issues in health, science, and technology that inform policy, practice, and public understanding of bioethics.
2021 Adverse Events selected as winner of the 2021 Robert K. Merton Book Award, Science, Knowledge, and Technology Section of the American Sociological Association.
2010 Medical Research for Hire selected for Author Meets Critics Session at the American Sociological Association Conference held in Atlanta, GA, August 2010.
2004 Selected as a recipient of the Founders Award of Excellence for recognition of academic achievement and campus leadership at Rensselaer Polytechnic Institute.
2003-2004 Awarded a graduate scholarship from Delta of Connecticut Chapter of Phi Beta Kappa for dissertation research.
2002 Awarded level of distinction on Science Studies Field Examination as part of the doctoral requirements in Science & Technology Studies at Rensselaer Polytechnic Institute, Summer 2002.
1998 Awarded the Jane W. Torrey Prize for the study of social issues at Connecticut College, April 1998.
1998 Awarded the Esther Cary Prize for excellence in French at Connecticut College, April 1998.
1998 Inducted into Phi Beta Kappa, the National Honor Society for undergraduates, at Connecticut College, May 1998.
1997 Awarded the Nelly K. Murstein Prize for achievement in French at Connecticut College, April 1997.
